Monthly Archives: September 2017

Lower Back Pain

Communication shouldn’t give someone back pain, if it does that means that they have the incorrect device .    As I have discussed I have used the inappropriate communication device for five years which has given me severe back problems.   A  communication device should not hurt to use as over time the child can develop chronic pain in the body part they are accessing with.   The child needs to be comfortable while using the communication device and if they aren’t comfortable we need to change it immediately.   The act of communicating should feel natural and comfortable .

The correct device should be easy to use right when it’s provided to the individual, and that is actually  possible as we had tried a new device with myself and it immediately worked.   Children shouldn’t  have to injure themselves to communicating.   I want all of my clients to be comfortable while talking so they will want to communicate.   Communicating will  allow the individual to demonstrate knowledge with little effort and hopefully without pain.

As a professional who has used the inappropriate communication device for five years and have hurt myself using it,  the child needs to be comfortable while using the device.  Children are not  like adults they don’t have thematurity to work with something which hurts their bodies and they will just stop talking.   We have the responsibility to find the right device for every individual and once we do,  we can sit back and watch them thrive.

 

Until Next Time,  Enjoy Your Children

Customized Everything

As occupational therapists and mentors we want to customize everything because that is how the child is able to properly function in life. A child with Cerebral Palsy or disabilities like that will work better if everything is tailor made for their needs. To make everything specifically for the child allows the child to be supported accurately and hopefully we are able to prevent injuries. As occupational therapists and mentors we have the assistive technologies to make this possible. We want the child comfortable in every equipment they use so they are comfortable in every piece of equipment that they use throughout the day.

As a mentor with a lot of back problems I look at everything from the seating system to how they are using the talker and if he or she is struggling. If it is a minor adjustment then we know the talker is a right fit for the child but if we have done everything and the person is still struggling then it’s time to move on to the next device. As I have mentioned in my last blog using the inappropriate communication device can have lasting consequences on the child. The child should be at ease using the talker and the power chair because that hard repetition of the movement is going to give the child a long-lasting injury. We want the child at ease while using the communication device and the power chair.

As someone who has injured their back while using the inappropriate communication device for several of years I don’t want a child to suffer as I used to with an equipment. The child should be at ease communicating and driving the power chair. The child needs to type easily because all we want him or her thinking about is what they are doing for school or for fun. The equipment needs to become invisible and the child just needs to do what they need to do and if that isn’t the case we need to change something to make it the case.

Until Next Time, Enjoy Your Children

Hurting

My mentees are always hurting from tight muscles, so to help them I do a multitude of things to get them to relax and ease the pain. I put them into tumble foams that relaxes the muscles and I use a mix of conventional and unconventional treatments to help children feel more comfortable. Children need to feel comfortable throughout the day in order to be able to accomplish more within the day. Families who are open to using topical Marijuana have a better chance of seeing their children more relaxed and comfortable throughout the day. As occupational therapists and mentors, we are able to move their bodies easier if they are relaxed and not in pain. The alternative medicine helps them to feel more comfortable allowing us to move their bodies more frequently to where we need them to be.

For example, we know children with Cerebral Palsy are usually smaller size, when they are more relaxed, I am able to practice driving their power chair with them for a longer amount of time. Children who are more comfortable are also able to show us which body part works the best for them. We want to find a balance between them being tight enough to sustain their weight during transfers but loose enough to be comfortable throughout the day. If children are constantly in pain they aren’t eating or sleeping well, which results in a whole set of problems for them. Some seizures are caused by bursts of pain; which leaves us with no other option, except rush them to the hospital.

A child that is comfortable is less likely to experience seizures. One of my fellow colleagues, knew a child who was having twenty seizures a day and when the family gave her medical Marijuana, the amount of seizures that she was experiencing declined dramatically (five or less seizures a day). Sometimes thinking out of the box is the key to helping a child feel more at ease. The most important thing we can do for a child is to keep them comfortable which allows them to do what they need to do throughout their day.

  • Until Next Time, Enjoy Your Children

Hurting

My mentees are always hurting from tight muscle so to help them I do a multitude of things to help them to relax and ease the pain. I put them into tumble foams that relaxes the muscles and I use conventional and unconventional treatments to help children to feel more comfortable. Children need to feel comfortable throughout the day to be able to do more with their day. Families who are open to using topical Marijuana have a better chance of seeing their children more relaxed and comfortable throughout the day. As occupational therapists and mentors we are able to move their bodies easier if they are relaxed and not in pain. The alternative medicine helps them to feel more comfortable allowing the occupational therapists and mentors to move the body more to where they need to be to do therapy.

As we know children with Cerebral Palsy are usually small so if they are more relaxed I am able to practice driving their power chair with them for a longer amount of time. Children who are more comfortable are also able to show us which body part works the best for them. We want to find a balance between them being tight enough to sustain their weight during transfers but loose enough to be comfortable through the day. If children are constantly in pain they aren’t eating or sleeping well which causes a whole set of problems for them. Seizures are set off by a burst of pain well at the time and all we can do is rush them to the hospital.

If the child is more comfortable throughout the day they might have less seizures. I have a colleague who knew a child who was having twenty seizures a day and when the family gave her medical marijuana she was only having five seizures a day. Sometimes thinking out of the box is the key to helping a child feel more at ease during the day. The most important thing we can do for a child is to keep them comfortable allowing them to do what they need to do during the day.

Until Next Time, Enjoy Your Children

Tight Muscles

While tight muscles are helpful during transferring, it’s very painful for the child so we have medicine to help the child to be more comfortable. I know a young man who wasn’t been able to grow pass a ten-year old’s body size because his muscles are so tight.  As occupational therapists and mentors, we want our clients tight enough to be able to sustain their weight during transfers but also be able to relax after the transfer.  Children who are able to support themselves with someone holding them, are also able to be toilet trained, which makes them be like other children.

As occupational therapists and mentors, we are able to help our clients to be independent by using what they naturally have for their own good. If the child is able to do a pivot and sit transfer they are able to have one aide which helps them feel more “normal” at school.   If we are able to work on this skill in therapy, we are giving the child a lifelong skill. The individuals with this skill will be able to live more “normally” by only needing a hoist and one aide at a time. The down side of this, is the child is susceptible to developing pain because of tight muscles.

We can help this by providing a blend of medication that will help them relax enough to relieve the pain but also leave enough muscle tone to do the pivot transfers. As soon as we know our client has enough tone to be able to do a pivot transfer safely, we go to work at it right away. Children with Cerebral Palsy are usually small in size so it’s easy to hold them up during transferring practice. The transfers usually look like the child is standing or the aide lifts them to where they need to go. I use the latter option, as I have uncontrollable steps so it is safer for the aide to pick me up.

  • Until Next Time, Enjoy Your Children

Tone

Children with high tone are usually able to support their weight by using their tight muscles to help them stand, like myself. Children with high muscle tone are able to stand long enough for the aide to assist in pulling up pants. However, the down side of children having high tone is that they are more susceptible to developing pain due to the tightness of their muscles. It is a fine balancing act of using a child’s high tone for transfers but also keeping them loose enough to stay comfortable through the day. I am on a cocktail of medicines to keep me comfortable but still have enough tone to transfer. Unfortunately, like my personal experience, some of our mentees although they are children have to do the same. As occupational therapists and mentors, we have to look for that sweet spot, where our clients are comfortable but also still able to do transfers by weight baring.

Children who have enough muscle tone to be able to sustain their weight, makes it a one-person job for an aide to transfer the child. The down side of having high muscle tone is that children develop pain starting from a very young age, as the muscles are so tight. We have to find a balance between maintaining the child’s ability to sustain weight for their transfers but also keeping them comfortable enough to be able to live their lives fully. I don’t like using leg braces, as they are too restricting, so I work with the child to be able to tighten their muscles long enough to do the standing transfer and let go as soon as they are where they want to be. If they are able to do this at a young age, they are going to have the same transfer method for the rest of their lives.

As occupational therapists and mentors, we are enabling the children to be able to just work with one aide to help them, be “normal” at school. Due to my ability to support my weight during transfers, I have always had one aide, which has helped me look just like anyone else. I like to support children by holding their necks and the lower part of their bodies, to allow them to walk without touching the area, which they usually feel the most sore due to tight muscles. Children who are able to do a pivot transfer are also able to be toilet trained which makes the child like their peers. As occupational therapists and mentors we are able to use a child’s muscle tone to achieve their own independence.

  • Until Next Time, Enjoy Your Children

Tone

Children with high tone are usually able to support their weight by how tight their muscles are as they use that to stand. Children with high muscle tone are also able to stand long enough for the aide to pull up pants but the down side of high tone is children are more perceptible to developing pain due to their tight muscles. It is a fine line to using a child’s high tone for transfers and keeping them loose enough to stay comfortable through the day. I am on a cocktail of medicines to keep me comfortable but still have enough tone to transfer.   As occupational therapists and mentors we have to look for that sweet spot where our clients are comfortable but still able to do transfers by weight baring.

Children with enough muscle tone to be able to sustain their weight making it a one-person job to transfer the child. The down side of having high muscle tone is that children develop pain from a young age as the muscles are so tight. We have to find a balance between maintaining the child’s ability to sustain weight for their transfers and keeping them comfortable enough to be able to live life. I don’t like using leg braces as they are too restricting so I work with the child to be able to tighten their muscles long enough to do the standing transfer and let go as soon as soon they are where they want to be. If they are able to do this at a young age they are going to have the same transfer for the rest of their lives.

As occupational therapists and mentors we are able to give a child a skill to be able to just work with one aide to help them to look “normal” at school. Due to my ability to support my weight I have always had one aide making me to look just like anyone else. I like to support children by holding their necks and the lower part of their body to allow them to walk without touching where they are usually sore due to tight muscles. Children who are able to do a pivot transfer are also able to be toilet trained which makes the child like their peers. As occupational therapists and mentors we are able to use a child’s muscle tone for their own independence.

Until Next Time, Enjoy Your Children

Being Comfortable

As occupational therapist and mentor we have the ability to keep our clients comfortable throughout their day. As I mentioned I don’t believe in restrictive wheelchairs because they tend to cause pain so instead I use tumble foams for their comfortably. I want to prevent the child from developing pain because once they do it is likely for them to have that pain for the rest of their life. Tumble foams are just more forgiving and allows the child to sit in a more comfortable position throughout the day. Healthy children are more able to do school as their peers and some parents do alternative medicine to keep the child comfortable throughout the day.   Children who are comfortable for most of the day are able to stay in class longer.

Most children with significant physical disabilities usually develop pain because they are high tone with tight muscles. I, or their aides, hold them in class as they are still able to access their talkers to participate in classes in a more comfortable way. Children who are more comfortable throughout the day are able to demonstrate knowledge better and quicker. Children who are comfortable are also able to go to playdates after school and do homework. I also don’t believe in using a communication device which hurts to use as that is how I developed back problems from using the inappropriate talker for seven years and we had known that was an inappropriate talker from the beginning.

We want to find a talker that won’t hurt the individual because if they are healthy they are going to be able to do more of the school work. Children who are able to communicate with ease are able to communicate at our speed without having pain at the end of their day. Children are also going to be comfortable doing school work instead of struggling with typing. For quads the tracker is really hard on the body which why is I like the eye gaze as it is easier on the body and in fact I am thinking about getting one for myself. We want our clients to be comfortable throughout their day to keep them healthy to do greatness with their lives.

 

Until Next Time, Enjoy Your Children

Comfortably

As occupational therapists and mentors, we have the resources to help a child be comfortable throughout their day. Children who are comfortable are able to get more accomplished throughout their day and as you know I am a big user of tumble foams, as they allow the child to lay back. If a child is comfortable during their day they are able to do more at school.

We have rolling mounts to align the communication device to their tumble foams, which allows them

to do school work. Children who are comfortable are capable of showing their knowledge quicker and more accurately. I had a mentee whose wheelchair had been a tumble foam which allowed her to do more in the day because she wasn’t in constant pain. If we keep children more comfortable, we are able to keep them healthy enough to be children and enjoy their interactions. I know of too many children who have passed away because they were so uncomfortable and in pain that they had gotten sick and never recovered.

Sometimes wheelchairs are too restraining for a child, which causes them pain which once developed, is very difficult to reverse. I can tell you from personal experience, that living with consistent pain can be very challenging emotionally and physically. In extreme cases, such as my own, when appropriate Doctors can and should approve the use of alternative medications and practices to help alleviate physical ailments. “Tumble foams” are a resource that we use to provide someone a means to relax tight muscles and the rolling mount allows them access to their communication devices. A comfortable child is not only able to show how intelligent they are but they are also able to play with peers which is also important for their social development. A comfortable child will have enough energy to perform activities in therapy (after school) and still do their homework. Our goal is to keep every child comfortable so they are able to live a long and functional life.

 

  • Until Next Time, Enjoy Your Children